Numbers115



Ten Steps
  • Eat the right food. 
  • Safeguard your drinking water.
  • Sleep well.
  • Walk briskly everyday.
  • Sing a simple tune.
  • Accept things as they are.
  • Anticipate for good results. 
  • Act on what you have anticipated upon. 
  • Write in your journal daily. 
  • Share with others. 








NUMBERS 11:5 











Numbers115

Carlyle Deauna

by Jodel Deauna on 01/28/15

I have been blogging on the role of the Electronic Health Records (EHRs). There are other roles that a patient with Autism can profit from using the EHR. The search box is another tool. The availability of a simple search box will allow us to expand our knowledge. The search engine should be user-friendly. We may even view our X-ray images, MRI and other diagnostic images in the EHRs. Electroencephalogram (EEG), which is commonly requested for our management, can  be learned, too, by us. By the way, we have already started linking with medlineplus.gov. Just type in Medical Words into its search box. Then, click the tutorial and you can start learning Medical Words immediately. 

Carlyle Deauna

by Jodel Deauna on 01/28/15

I have been blogging on the role of the Electronic Health Records (EHRs). There are other roles that a patient with Autism can profit from using the EHR. The search box is another tool. The availability of a simple search box will allow us to expand our knowledge. The search engine should be user-friendly. We may even view our X-ray images, MRI and other diagnostic images in the EHRs. Electroencephalogram (EEG), which is commonly requested for our management, can  be learned, too, by us. By the way, we have already started linking with medlineplus.gov. Just type in Medical Words into its search box. Then, click the tutorial and you can start learning Medical Words immediately. 

Carlyle Deauna

by Jodel Deauna on 01/27/15

Added research is necessary as soon as possible. We are helping out. We support Autism Research. Feedback from us is one of the best criteria for knowing the importance of research. Although it is hard for us to do, it can be done. We can give our inputs on a daily basis. Our everyday functioning will be very helpful for Autism Research. Our feedback will also be very helpful for other studies. These studies are happening right now.

Carlyle Deauna

by Jodel Deauna on 01/26/15

The Patient-Centric Approach of Care will let us learn the EHRs. Specifically, we can learn the Pharmacy Information System together. It is challenging but it is doable. For this to work, we need to learn simple medical terminology that will allow us to understand the name of the drugs and describe the action of the drugs. Medical Terminologies are mostly in Latin and Greek. I found the National Library of Medicine and they have lots of materials that we can use. Blog me for questions.

Carlyle Deauna

by Jodel Deauna on 01/25/15

We are either seen in the clinic or in the hospital. We have information system that is common to all of us. One of the system is the Pharmacy Information System. We can learn about this. In one of my research, it showed knowing one's medication can prevent polypharmacy. We can learn new skills and this will help us all. Today, we tested our website linked with http://medlineplus.gov/.



Carlyle Deauna

by Jodel Deauna on 01/24/15

We are trying to put up an online course in this website. Technologies can be used to educate us. By doing so, we can better understand autism and our health. This will benefit us all at any range, where we are on the autism spectrum. Most of us are treated as outpatients. Although we are somehow educated, in an office-based clinic, an online course can be very helpful for us. This will allow us to understand better the medical terms, which may be able to read. Here in Boston, I made a research on two hospitals. We have here the Franciscan Hospital for Children and the Massachusetts General Hospital. Both hospitals treat patients with autism like us.

Carlyle Deauna

by Jodel Deauna on 01/23/15

The roles of EHRs are many. The EHRs helped us to access our information and to search for our own records. Some of us are high-functioning. Some of us have savant skills. We are capable of using technologies. We can our skills with others. We can even use Web 2.0 technologies such as TeleHealth and Social Media. Many of us are using the Social Media. We can get connected. Being connected with others will bring us outside of our confinement. We have been by ourselves for a long time. Now, we have the opportunity to express ourselves using social media. We are capable of exchanging ideas. We are also very capable of developing friendships. Although not easy for us, it is highly probable.

Carlyle Deauna

by Jodel Deauna on 01/22/15

I would like to continue with AIMS. The data generated should be evaluated and monitored. Those data need security. A Master Patient Index for patients with Autism will be able to identify us. This is a security solution. The MPI should be protected and should solve the issue of . We generate a lot of data. It has been recommended that rule-based algorithms would be used. I agree. These approaches will make AIMS possible, increasing the options of treatment for us and increasing information sharing.

Further solutions can be found by further research and even by using social media. The studies and research that support the partnerships of the patients, the parents, the physicians, the nurses, and public health will allow the acceptance of patient-centric approach of care. This is good for us.


Carlyle Deauna

by Jodel Deauna on 01/21/15

To solve our problems, we need an Autism Information Management System (AIMS). Non-governmental organizations (NGOs) and the US Government could help. We can make AIMS together. Our AIMS should be given the ability to access the information generated. The data generated should be evaluated and monitored. The services of the AIMS should be supported. These goals are achievable by making AIMS able to electronically transfer information. The electronic transfer that will benefit us with Autism. It is also beneficial to others with disabilities. 

Carlyle Deauna

by Jodel Deauna on 01/20/15

The involvement of other scientists brought about significant findings for us. Their involvement led to the increase of autism diagnosis. Many studies are now being conducted in neuroscience. I believe that the limbic system is involved in our condition. There are still many unanswered questions. I read an article "Health Informatics: A Roadmap for Autism Knowledge Sharing" by Ron Oberleitner. It pointed out that we need an Autism Information Management System (AIMS). It will be designed to make patient registries interoperable. The objective of AIMS is to integrate it to EHR. It will be patient-based, coexisting with relevant projects, and fully integrated. This is a solution. Solutions are what we are looking for. The solutions are for us and for others with disabilities.






Carlyle Deauna

by Jodel Deauna on 01/19/15

Happy MLK Day!

Autism is a developmental disorder, which significantly affects communication and social interaction. We are diagnosed usually at an early age. Autism is lifetime. Studies demonstrated that parents are accurate when they report they observations. These are all very important for diagnosis. We are observed to have delayed speech, unresponsive, and poor eye contact.

A Diagnostic and Statistical Manual of Mental Disorders (DSM) was made for us. I am sharing what it is.

There must be a total of six (or more) from the qualitative impairment in social interaction.
(1) qualitative impairments in communication and
(2) repetitive patterns of behavior
(3) From (1), (2), and (3), with at least (1) having two manifestations and from (2) and (3) having one each.

For (1), the manifestations are:
(a) impaired nonverbal behaviors like eye contact
(b) poor development to relate with peers
(c) lack of sharing enjoyment with others
(d) lack of reciprocity
For (2), the manifestations are:

  • lack of communication
  • those with speech have impairments in sustained conversations in individuals with adequate speech, marked impairment in the ability to initiate or sustain a conversation with others
  • repetition of words
  • lack of social play
For (3), the manifestation are:
  • preoccupation with one interest
  • adherence to routines
  • repetitive mannerisms
  • preoccupations with parts of inanimate objects
  • There are delays in of these areas before the age of 3: interaction, using language, and symbolic play







Carlyle Deauna

by Jodel Deauna on 01/17/15

These are our blogs. Although under Professor Deauna's name, these are our blogs. The patients with Autism and their parents are to connect with others because of technologies. Our society has become an information-based society. The availability of computers and technology allowed patients to have their information accessed online. These information can be shared anywhere. The Information Age is helping in the diagnosis of Autism. For a long time, Autism was an enigma. Although the cause of autism is still unknown until now, there is an increase knowledge of Autism and its awareness. The available technology will answer the questions that need answers. Together, we can do it.

Carlyle Deauna

by Jodel Deauna on 01/16/15

I'm sharing more on EHRs. Although EHRs have all these functions and advantages, the acceptance was really slow. Then, the surge of its use happened. The use of EHR increased by 37%. "Meaningful Use" was introduced. "Meaningful Use" is capturing coded information and tracking conditions that can initiate reports. We, with autism, can benefit from this because we have huge amount of records. We can connect ourselves with the technologies happening. I learned in Cognitive Science that we see things differently. We can use this together for the good of all of us. That is why we are looking for a grant that will specifically make the EHRs, with all related technologies, beneficial to all of us.  This can only happen if we will be able to understand EHRs together.

Carlyle Deauna

by Jodel Deauna on 01/15/15

As of yesterday's blog, I had mentioned that I will share the eight core functions of the EHRs. They are the following:

1) Listing Data and Health Information--This is for us with Autism.

2) Managing Results--Because we have lots of results, this is good.

3) Managing Orders--This is the Computerized Provider Order Entry systems, which can improve the processes of workflow automatically generating orders and increasing the efficiency of orders filled. This is very good for us.

4) Supporting Decision Making--Improving preventive healthcare, which we need.

5) Allowing interoperability and communication--Connectivity is improved but we are not there yet. We are trying to figure this out.

6) Improving Patient Support--patients' conditions can be monitored by using Electronic Devices.

7) Reporting Administrative Procedures--including the claims and billing matters.
ICD-10 is coming soon.

8) Coordinating Public Health--where improvement of surveillance practices can prevent outbreaks of diseases. These days this is very important.

I'll be blogging more tomorrow.






Carlyle Deauna

by Jodel Deauna on 01/14/15

I am sharing that in the early 1990s, Congress had passed "The Patient Self Determination Act". This act required organizations to inform patients. Also, this act allowed the participation of the patients. Furthermore, it informed the patients of best practices. Gradually, there was a shift from a physician-centric care to
patient-centric care of approach. Although true for most patients, it was not for patients with Autism. Autism was a complicated matter. The diagnosis of autism was ambiguous. Then, there was a change with technology. The medical records were integrated 15 years ago. The Electronic Health Records were introduced. Formatted electronically, the EHRs focused on the patient's information, where it can be received, stored, and transmitted electronically. It was very favorable for patients with Autism. Autism is lifetime. We accumulate many records since our diagnosis. The advent of EHRs made our records integrated. With the evolution of EHRs, the functions of EHRs became defined, which were good for us.
I will discuss the core functions of the EHR on my next blog. 

Carlyle Deauna

by Jodel Deauna on 01/13/15

With sharing, it is best to make what is being shared as clear and user-friendly. I've been asked about the Role of Electronic Health Records in the adoption of the patient-centric approach of care for Patients with Autism. I am going to blog the content of my paper. I would like others with Autism like me to be able to read it also.

Patients with Autism often lived with their parents. In their homes, their support from others is minimal. However, the increase in resources and in autism awareness brought changes for us. We are able to connect to others. These changes, which include using computers, social media, and networking with others, brought about changes for us. Although we are inclined to our homes, we are now able to communicate with others using YouTube, Twitter, and many others.

Carlyle Deauna

by Jodel Deauna on 01/11/15

I am working on my Autism App. I will be sharing when I am done. 

Carlyle Deauna

by Jodel Deauna on 01/10/15

I would like to share again the paper I wrote on the Electronic Health Records and its role on patient-centric approach of care for patients with Autism/Asperger. This is for us. Right now, I am doing statistics. This is for our data.

Carlyle Deauna

by Jodel Deauna on 01/09/15

Although research is complicated and even abstract, we can understand it together. We can understand it together by Logic. Actually, it is mathematical logic applied. I am still working on our grants, which is for the benefit of those with Autism/Asperger. 

Carlyle Deauna

by Jodel Deauna on 01/08/15

I am busy right now with my "Research Methods". Mine is "Knowledge Based" and I am sharing the concepts. With regards to the grants, I would like to get funding from the US Government so that I can share my products and services to those with Autism/Asperger. 

        Health Information Technology Awareness Center
for
  Autism/Asperger
We are sharing the Electronic Health Records (EHR) for patients with Autism/Asperger. We are sharing the EHRs with their parents and their families, too. 

Please blog us on this site. 
Professor Jodel Carlyle P. Deauna
Mr. Carlyle Jude T. Deauna